Lupus

Lupus. It’s that weird disease that feels impossible to diagnose. Managed by rheumatology which is the specialty that manages all those elusive diseases….

Of which, I now have. I have lupus.

The last several months have been an interesting journey. Life has been throwing me a lot of curve balls and it seems that each time that I felt like I had a handle on it, life would throw me another. In early October, right when we moved out here, we had our first miscarriage. Very early at about 6 1/2 weeks. Then we were lucky and got pregnant right away again. Yay! And saw a heartbeat, but then lost that baby around 9 weeks. So, this prompted a battery of tests with more and more abnormal results…. which finally lead up to the phone call I received yesterday: “You have lupus and you should start taking plaquenil today”.

I spent the rest of the afternoon in shock. I would see a patient, come back to my office and cry, then go out and see another patient. I’m sure I looked like a crazy doctor with bloodshot, puffy eyes.

Right now I feel overwhelmed, scared, and helpless. I mean, why lupus? Why an autoimmune disease? Why not something like high cholesterol where I can change my diet? And why a disease that can cause kidney failure? (Right now I can only seem to remember lupus patients on dialysis or with kidney transplants- not those that are functioning well).

I imagine I will have many more blog posts on this in the days/months to come as I wrap my head around what this means for me and my family (and hopeful future family).

-erica

6 thoughts on “Lupus

  1. erica,
    there are no words to say to express my sadness for you. i love you, my friend. i am thinking of you and praying for you, and i wish i could come wrap my arms around you… please keep us informed on this journey and what lupus means and feels like on the day-to-day, how you and jake are doing, etc. we want to walk with you through this, even from colorado. love you two.
    anne

  2. Hey Erica:

    SO, sorry to hear the news. When I was tested for RA, they did a full Lupus panel, as the 2 can go hand in hand. I will say that the medicines for the auto immune diseases have advanced greatly in the past few decades. After being on Plaquenil and Methotrexate, etc. I have full mobility and no more pain. Prior to the diagnosis, it was bad. My doctor is convinced that food allergies and candida have a lot to do with RA, and RA can be lessened or even halted with the right diet and treatment. If you want to know more, send me an email.

    Love you! Laura

  3. Hi Erica,

    You don’t know me, so I hope you don’t mind me commenting. I’ve been reading and enjoying your blog for some time now and just wanted to say how sorry I am that you’ve had such a difficult few months and now this diagnosis.

    You’re in my thoughts and I am sending you my warmest wishes.

    With love,

    Sophie

  4. Oh Erica, I am in shock as well. You really have had a rough year. I am sending my love to you, my heart is with you right now. How ironic for a doctor to get this kind of diagnosis. But hopefully, that will be a blessing that will be to your benefit. I know you are strong and I pray all the best for you.

    xoxo
    Lisa

  5. Erica,
    Sending positiveness your way. Prayers for healing. Props for posting on a blog. I’m still battling my fear to blog even if it’s just about food or something.
    hugs,
    SSS

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